19th November 2018

Why I wish my father had taught me about death and dying

It would have brought us closer.

Why I wish my father had talked tom e about death and dying (c) KarinSieger.com

Parents can teach us a lot of lessons. Not all are helpful. But there is one lesson I wish my father had taught me before he died.

Recently my mother told me about an episode that happened when I was 6 or 7 years old. I had developed glandular fever and needed to be hospitalised. My father had visited me and I had asked:

“Papa, am I going to die?”

I have a vague recollection of the children’s hospital and a corridor full of colourful toys. But I did not remember the conversation or the question.

Hearing the story made me feel sad for my younger self. What must have been going through me?

“And what did Papa say to me?”

My mother could not remember.

“And what did you say to me?”

I never asked, because I did not want her to feel guilty.

My father had probably said “No. You won’t die.” Whether he took me in his arms or felt moved – that I will never know. He died a few years ago.

As long as I can remember, my parents had always been prepared for death in a matter of fact way.

From a young age onwards I was told where important documents are kept. Funeral arrangements had been thought through. And the older my parents got, the more frequent the reminders to me about it all.

But talking about death and dying? There was no mention of the emotional side of death, loss and grief.

Because my parents had me relatively late, their mortality was always on my mind. But I needn’t have worried. My father died aged 93 and my mother, 81 now, is mentally and physically fit.

And then the tables turned thoroughly, brutally and for my parents shockingly.

When I was diagnosed with (breast) cancer in 2012, the possibility of me dying before them had never occurred – to any of us.

With all the planning and worrying over the years, that is the one big blind spot we had.

This was not meant to be. It was the wrong way around.

Soon after my diagnosis I visited my parents. I was more concerned with their wellbeing, than my own. I wanted to reassure them.

Looking at the photos of this family visit, it now looks surreal. Us smiling, me a picture of health on the outside, while carrying a big tumour inside.

Photos can be deceiving as much as the people on them.

On my last day, a young relative, who by then had lost 2 husbands to cancer, dropped by to wish me well. Again, those big smiles. She died a few years ago of cancer herself. Unbelievable!  Surreal.

And again, there was no talking about death – my death.

One year later, with the treatment over, there was great relief all around. But it is a relief I cannot share. Because the risk of cancer coming back is real.

When I talk about my death my mother says more often than not:

“Stop being so morbid, Karin.”

I know it pains her too much. Especially since my father’s death.

And here is the point – my father’s death.

I think it was 1 year before he died unexpectedly and a few months post my cancer treatment. We had finished breakfast and my mother was in the kitchen. While my father was always very reserved, even with me, I felt I could get closer to him, when we were on our own. So I asked him:

“Papa, you and I, we have something in common. We both are facing up to the end of our lives, whenever that may be. Can you give me any advice? What should I do?”

It was the kind of conversation we never had – talking about death. And the kind he would have never started by himself.

He said nothing.

I cannot remember whether he actually said “no, there is nothing”. He certainly did not ask me how I felt.

I think he could not rather than he would not talk about death and dying.

But I wish it had been something he could have advised me on. I wish there had been some wisdom he could have shared.

Since my first and second cancer diagnosis and treatment I explore my death a lot more proactively. I am less afraid of death, but more concerned about the manner of it, especially if it is from cancer. While I have not sorted out the practical side of things by any means, I do think and talk about it a lot.

We as a family and we as a society, just do not do talking about death and dying well. And that’s why living at peace and coping with grief can be so hard.

If we cannot make peace with our mortality, then it will be that much harder for the ones we leave behind to make peace with our death.

In order to be at peace with our life, we need to be at peace with our death: Read More

I wish my father could have talked about death and dying. Because it would have brought us closer. It might have helped him and it would have helped me with grieving for him and facing my own mortality.

Reaching a point of acceptance and peace regards our mortality can be hard. But I find the pay-off empowering.

Talking about our own death without fear can build hope and strength in us and those we leave behind.

(Published by Huffington Post.)

Image courtesy of Free-Photos


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2 Comments

  1. There are many resonances for me with what you’ve written here, Karin. I, too, was seriously ill—with acute appendicitis—at 6 years old, and spent a couple of weeks on a ward with other children who were seriously ill or dying. I began to think about death a lot at that age. Then, in my 30s I was diagnosed and treated for cancer—again, thinking deeply about death. I worked in hospice for many years. Now, in my 50s, I have another serious disease caused by the intensive radiation treatments for my cancer 20 years ago. This disease is progressive and degenerative, causing damage to my spine and heart. Currently, I have some disabling problems with my neck and upper back, and fairly advanced heart disease. I face the prospect of increasing disability, and a shortened life expectancy—though it’s unclear how quickly this will happen, so, essentially, I’m just experiencing an accelerated version of the mortality we all face. When my parents both died in 2015, they were unprepared and somewhat afraid—but both let go, surrounded by loved ones, and had peaceful deaths. I wish they could have advised me, but I think we all encounter our deaths in our own ways—so the love of my parents is more important to me now than any advice they could have given me. Thank you for your thoughtful, moving, and insightful approach to this subject. Reading it was valuable to me, too—giving me a sense of what we all share, and reminding me that I’m not alone as I walk toward the end of my life, whenever that may be.

    • Dear Kirsten, thank you so much for sharing your own experiences. I am deeply touched and moved by your story and circumstances. So many thoughts come to my mind about memories, family, health and illness and the double-edged sword, that is cancer treatment. Yes, you are not alone. Sending lots of wishes. Karin

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